Patient and Public Involvement (PPI)
Patient and Public Involvement (PPI) is the process whereby patients and members of the public are actively involved in shaping the goals, design, and evaluation of research projects. PPI can be integrated throughout the research process. Examples of PPI in ongoing Swiss HIV research studies include:
- identification of research priorities
- Integration of one or more people living with HIV into research study management teams
- Co-creation of research design and documents i.e. patient information and recruitment/consent documents
- Pilot testing of research resources i.e. documents as above
- Critical review of data analysis and/or interpretation of findings
- Co-creation of lay summaries
- Dissemination of findings through networks of people living with HIV
These are just a few examples and by no means constitute a definitive list. If you would like to discuss pertinent PPI activities for a particular study, please feel free to contact either David Haerry (david©haerry.org) or David Jackson-Perry (David.Jackson-Perry©chuv.ch).
For further guidance on how to implement PPI in your own HIV research project, check out the PPI map.